Hi close friends, I hope you all have been effectively and that you are kicking off summer time in the most effective way doable!
So numerous of you have achieved out to inquire how Dominic is carrying out and though I share a quick picture on Instagram stories at times, I required to pop in quickly to give you an update.
Considering the fact that I last wrote, Dominic has done cycles two and 3 of chemotherapy. Equally produced him ill one day of the treatment method but with a tweak of the nausea meds, he was sensation greater.
His new favorite in-clinic activity? Tunes therapy! He will get these kinds of a big kick out of participating in the devices 😁
He is also Quite into day by day bingo 😍
On the previous day of his 2nd cycle, he had the possibility to tour the helicopter pad on the clinic roof, which he Cherished. The look at was remarkable and we realized tons of pleasurable points (mom enjoys a excellent field excursion, ha)!
Though residence, he proceeds to participate in and rather significantly enjoys life as regular, which include loads of outdoors time now that it’s awesome out!
Amongst rounds two and three of chemotherapy, we traveled to New York for Dominic to be viewed at Memorial Sloan Kettering, where by they have a crew of pediatric oncologists who focus in neuroblastoma.
He is currently being taken care of underneath their direction, so much obtaining all of his chemotherapy below in Pittsburgh, but we will travel there for his tumor removal surgical procedures.
We both had our 1st Uber trip, had Shake Shack for the initially time (SO Fantastic), and Dominic had his very first continue to be in a hotel. A thriving vacation, but there is certainly no spot like house!
Our New Normal
We are acquiring pretty applied to the signals of small hemoglobin (two times in a row of having much more drink breaks than usual when taking part in outside the house? We guessed he was likely to require blood when he went to his clinic appointment the next working day and, sure more than enough, he did) and small platelets (more bruising). He has experienced a number of transfusions of the two considering that beginning this journey, so a good huge thank you to everyone who has at any time donated blood, as we are now so much more acutely mindful of the worth of this selfless act.
Hemoglobin, platelets, white cell counts, neutrophils, and ANC figures are now just prevalent dialogue right here.
We have all form of settled into our new routine of treatment options, outings to the clinic, controlling medicines, line flushing, and many others.
The major hurdle given that this previous cycle of chemotherapy is that we have experienced to give Dominic day-to-day shots (vs the just one-time photographs just after the 1st and 2nd rounds) and it is the absolute worst. He has always hated pictures and he just dreads them, I get anxious, and it is just a complete SCENE. The day by day shots have been used mainly because of his impending stem cell harvest, to ensure his counts had been robust (see below).
This coming week, Dominic will have a stem cell harvest, wherever they will insert a non permanent line to extract stem cells (which will then be saved) should really he have to have them in any capacity throughout cure down the highway. It is our hope that he would not, but they will be there if he does.
The subsequent big phase is in two months when he will have his tumor removing operation. Pursuing the surgical procedure, he will have an additional spherical of chemotherapy and then a few weeks soon after that, a battery of exams and scans to see wherever we stand with the disorder.
Make sure you continue on to pray that the most cancers is responding to treatment, that the surgeons are capable to remove the tumor securely and correctly, and that he has a rather effortless recovery.
Enjoyment at Home…
A couple much more photos of the kids from current months ❤️
Wishing you all a enjoyment and risk-free get started to your summer months! ☀️❤️