Dominic Update 3.0 – Brown Eyed Baker

Hi good friends!

I hope that your summer season has been absolutely wonderful ☀️

I’m popping in these days to present an update on Dominic so a lot of of you have written and asked how he is undertaking, and how the surgical treatment went, and I thank you for your endurance!

Initially, a Thank You

The outpouring of wonderful cards, postcards, and gifts that have been sent to my PO box has been so heartwarming. Our family members is fully and completely humbled by your thoughtfulness, and we thank you from the base of our hearts for having time out of your working day to do some thing that would bring a smile to Dominic’s face ❤️ THANK YOU!

Surgical procedure Update

Doing some developing at the hotel after pre-op appointments.

Dominic experienced his tumor resection surgery on Monday, June 20th at Memorial Sloan Kettering in New York. He went into the functioning place at 9:30am and arrived in his room in the pediatric ICU about 6:45pm. Leaving him in that working space was intestine-wrenching, but an OR nurse was in a position to present updates on a frequent basis during the working day, which made all of the waiting around significantly significantly less agonizing. The surgeon was able to take away his overall tumor, as well as all of the diseased lymph nodes that ended up identified in his neck, stomach, and pelvis. He was steady throughout the total procedure, dropped pretty very little blood, and only stayed in the ICU for two times.

5 days post-operation.

The medical procedures just could not have long gone any superior and we are just so grateful to the surgeon and for all of the prayers that were despatched up for Dominic and the surgical team that day. There is one particular rogue lymph node underneath his still left clavicle that the surgeon realized going in wasn’t equipped to be reached from both the neck or the thoracoabdominal incision. It will be re-scanned and possibly taken off by means of a scope treatment or if it has shrunk plenty of, radiated. 

Restoration was pretty slow going the 1st couple days taking just a couple of ways was difficult for Dominic and it was so complicated to see him battling and turning out to be exhausted by these simple actions. He had a upper body tube and catheter for four days post-operation, and an abdominal drain for a week, which did not support! But it was also incredible to see what a distinction just a few of days could make. Functioning with PT and OT was superb and in just a week he was strolling again and forth to the playroom in the hospital. 

A couple of days right after surgical treatment, they discovered a chylous leak (essentially, fat leaking through the lymphatic process), which we were told beforehand would be a chance for the reason that so numerous lymph nodes would be taken out. It was the only real complication publish-surgical procedures they addressed it with treatment and a small-unwanted fat diet plan for about 5 days and it solved.

A 7 days immediately after medical procedures, Dominic started his fourth round of chemo. This a person strike him the hardest, likely for the reason that he was continue to recovering from surgery, he dropped his appetite for a amount of days, had some nausea, and was extra drained than normal. We were capable to head back again home just after that cycle of chemo was full, 11 days immediately after his surgical procedures.

The very last chemo procedure in advance of we had been discharged!

Back again Dwelling

The surgeon indicated that entire restoration will get about two months, but that walking and gentle training is fantastic for him, so he began by walking our driveway and cul de sac and got again on his pedal kart bike (bike riding was physician-accredited) for some straightforward rides. He has gradually regained a large amount of electricity, as properly as variety of motion, and is driving his bike speedier and is up and playing like standard.

One of our major hurdles considering the fact that obtaining residence is that he just was not again to himself for fairly some time, which we experienced been advised was completely usual. He was lethargic, not talkative, not intrigued in playing, and we all missed our Dominic!

Part of the challenge is that it took him a large amount lengthier to rebound from this final spherical of chemo than any of the earlier rounds that he had. His white counts sat bottomed out at or close to zero for two complete months, and he desired a few platelet transfusions and two blood transfusions in just a 7 days. We logged some Extensive days at clinic the week after we received again.

The other situation is that he experienced extended reduction of appetite immediately after chemo and had continued to lose fat (and he was very little to get started with!). As a result, the doctors begun him on an appetite stimulant a 7 days back and it would seem to have kicked in around the past couple of days mainly because he’s been consuming so a great deal better and obtained a very little about a fifty percent pound considering that his clinic appointment past 7 days.

All of his counts commenced coming back up in the final few of days and he hasn’t essential any transfusions since early very last week. We’re so grateful he’s finding back again to his previous self, little by little but certainly!

Subsequent Steps…

Subsequent week, Dominic will go through a battery of scans and a bone marrow biopsy to see the specific position of the ailment post-surgical treatment and immediately after completion of chemo.

Soon thereafter, he’ll get started his to start with round of immunotherapy antibody remedies, and then have radiation. The for a longer time-phrase approach is that he will have at least five rounds of immunotherapy remedies, spaced out about a month apart. Scans will be carried out soon after each two rounds to see how matters are hunting. Inquiring for plenty of prayers that we get cleanse scans as soon as doable 🙏🏻

Thank you all so much once more, for achieving out and inquiring about Dominic, for holding him in your prayers, for showering him with cards, and for continuing to adore on us as a family. We truly feel you, and your kindness and prayers lift us up and give us strength.

I’ll share another update after we get via our subsequent measures! In the meantime, we’re soaking up each individual single day that we can all spend time together underneath one roof ❤️

Leave a Reply